Home Become a Certified Provider Resource Manual Module 1: INTRODUCTION TO RESPITE


What Is Respite?

Respite is time off for families who are caring for children with demanding special needs. During Respite, a NAMI Maine Family Certified provider cares for the needs of the identified children.


History and Orientation: Whom do we serve?

Program history and intent: Whom do we serve? NAMI Maine Family Respite serves families with children up to17 years of age  who have significant developmental delays (6 months or greater) in two or more areas of development, behavioral and/or emotional special needs, or developmental disabilities including mental retardation and autism.


Delivering Family Friendly Services

(Concepts borrowed from Copernicus Projects, Kennedy Krieger Institute: Baltimore, MD)

  1. Respect family values Children, regardless of the type or severity of their disabilities, belong with and do best with families. Accordingly, families should receive whatever support is necessary to care for their family members with disabilities at home. When working with families stay alert to the subtle ways in which you might expose and impose your own values on the family. Using a style that is comfortable for you and for the family you are with will help communicate the underlying truth of the fact that we are all people and must be treated as such to thrive in any relationship.

People First Language

People First Language is a very simple concept: People are human beings first before they are people with disabilities. It is essential that you look beyond the "labeling" of the child's disability and avoid creating or reinforcing negative stereotypes. When speaking it is important to remember that a person is always a person first.

Eligibility Requirements

Families are eligible for NAMI Maine  FamilyRespite Services if they have a child who is birth up to seventeen years of age and has documentation of significant delays (6 months or greater) in two or more areas of development, or a documented emotional and/or behavioral disability, and is not eligible for respite services (such as foster care) through another agency.


Types and Uses of NAMI Maine Family Respite Care

NAMI Maine Family Respite funds allotted to families for respite equal a maximum of 192 hours per year or 48 hours per quarter. Parents and guardians may choose to use their quarterly respite evenly spaced out over the quarter or several hours in one month and very little the next. Care may be provided overnight or for periods longer than ten hours, but is paid at a maximum daily rate of 10 hours,( 10 hour day rate).


Connecting to Families

After completing the certification process, new providers are added to the NAMI NAMIProvider Register, and this information is distributed to families. Considerations a family may use when locating a NAMI certified provider may include needs of the child, type of respite requested, geographic limitations, and experience of the NAMI certified provider.


Guidelines and Expectations of NAMI Maine Respite Providers

Guidelines for NAMI Maine Certified Respite Providers

A successful and effective NAMI Maine Respite Provider:

  • Provides NAMI respite for at least one family.

NAMI Maine Program Expectations

NAMI Certified providers are per diem employees of NAMI Maine.   As per diem employees they are not allowed to work over 30 hours per week.


HIPAA & Confidentiality

What is HIPAA? In 1996, Congress passed the Health Insurance Portability & Accountability Act, or HIPAA. In 2000, the Department of Health & Human Services issued final regulations under HIPAA establishing privacy standards for certain protected health information and final regulations became effective April 14, 2003.


NAMI Maine Allocation and Payment

NAMI Maine Respite Care has two basic levels of service. Each of the two levels reflects the amount of care needed by a child and is determined according to the following criteria:


NAMI Maine Workmans Compensation

NAMI Maine certified respite providers are covered under the NAMI Maine workmans comensation program, see the NAMI Maine Program Director as needed.

Funding for this program provided by the Department of Health and Human Services